CHM News & Events

Our team from the Center for Health Measurement (CHM) shared our latest research at recent national and international meetings:

🌟 Child Neurology Society – 54th Annual Meeting (October 8–11, 2025)

* Grace Strong: Assessing Communication in Children with MECP2 Duplication Syndrome: Cognitive Interviews using the Observer-Reported Communication Ability (ORCA) Measure

* Bryce Reeve: Assessing the Communication Ability of Individuals with Rare, Neurodevelopmental Disorders: The ORCA Measure

🌟 ISOQOL Annual Conference (October 24–25, 2025)

* Fiorella Guerrero: Using Item Response Theory for Validity Evidence with the DASS-21 in Rural Peru

* Theresa Coles: Development of a Conceptual Model for Cognitive Impairment in Thrombotic Thrombocytopenic Purpura 

* Fiorella Guerrero: Quality of Life in the Rural Highlands of Peru 

* Laura Mkumba: Understanding the Natural History of Cognitive Impairment in Immune Thrombotic Thrombocytopenic Purpura: Qualitative Perspectives of Patients and Observers 

🌟  FAST ABOM-TRS Meeting and Global Science Summit (November 6, 2025)

* Abigail Rader: “What Does My Child's Score Actually Mean?” Enhancing Interpretation of the ORCA Measure Through the Design of Vignettes