DataShare Data Assets

Researchers looking to find more information about the Duke PopHealth DataShare™ offerings of Medicare, NC Medicaid, HCUP, and Supplemental Data can find more information here.  To begin a collaboration, or to find out if the data meet your needs, complete our resource request form. After we receive the completed form, we will review your responses and contact you via email to further discuss your project and/or provide a budget for requested services. See the Duke DataShare Wiki (Duke login required) for detailed information about available data.

Chronic Conditions Warehouse (CCW) Study Size Estimator

CCW Medicare Information

 

Nationally Representative Samples
Data Asset Description Years Included
Medicare 5% National Sample Claims for a nationally representative random sample of all Medicare beneficiaries. This includes Medicare Part D prescription claims for beneficiaries with Part D coverage. The Part D files do not have information on drugs given during hospitalizations or which are paid under other auspices (e.g., hospice). Please note that 2006 is the first calendar year Medicare Part D claims became available to researchers, and is the first calendar year of Part D claims available through DPHS. See DataShare Wiki Data Catalogue
Medicare 100% Inpatient  Inpatient hospitalization claims and master beneficiary summary files. (i.e. enrollment, chronic conditions, cost and utilization). Does not include Medicare Part D prescription claims. See DataShare Wiki Data Catalogue
Medicare ACO Beneficiary claims aligned with providers participating in an Accountable Care Organization (ACO). This includes Medicare Part D prescription claims. The Part D files do not have information on drugs given during hospitalizations or which are paid under other auspices (e.g., hospice). 2011 - 2014
Medicare 5% Limited Data Set (LDS) Claims for a nationally representative random sample of all Medicare beneficiaries; does not include prescription drug claims. Less stringent criteria for CMS DUA approval See DataShare Wiki Data Catalogue
Medicare 100% Limited Data Set (LDS) Inpatient file claims for 100% of Medicare beneficiaries; does not include prescription drug claims. Less stringent criteria for CMS DUA approval See DataShare Wiki Data Catalogue

 

Geographic Samples
Data Asset Description Years Included
Medicare 100% NC/SC  Claims for beneficiaries in North and South Carolina 2013 - 2017
Medicare 100% SEDI

Claims for beneficiaries participating in the SEDI project (Durham/Cabarrus NC, Mingo WV, Quitman MS, plus border counties)

2009 - 2014
Medicare 20% Geographic Sample Per state claims based on 20% beneficiary random sample in Florida, New York, Alabama, Tennessee, Illinois, and Louisiana 2013 - 2016
Duke EHR-SEDI Data Mart Medicare claims linked to Duke University Health System EHR data for patients with a Durham Country, NC address 2007 - 2014

 

Disease Cohorts
Data Asset Description Years Included
100% Medicare Mitral Valve PX Claims for beneficiaries who have undergone a mitral valve procedure 2006 - 2014

 

Registry Linkages
Data Asset Description Years Included
GWTG-HF Claims for beneficiaries linked to AHA's Get With the Guidelines-Heart Failure registry of patients hospitalized for heart failure 2003 - 2016
PROSPER Claims for beneficiaries linked to AHA's Get With the Guidelines-Stroke registry of patients hospitalized for stroke 2003 - 2015
Medicaid
Data Asset Description Years Included
NC Medicaid

NC Medicaid claims data (limited data set) of payments from the NC DHHS to healthcare providers for services rendered. Additional files include member and provider files.

See DataShare Wiki Data Catalogue

NC Medicaid Data Request Process

NC Medicaid Data Dashboard

HCUP Claims
Data Asset Description Years Included
National Inpatient Sample (NIS) Created from the largest publicly available all-payer inpatient health care database in the U.S. 1994 - 2015 (varies by file)
Kids’ Inpatient Database (KID) All-payer pediatric database of hospital stays. 2000 - 2012 (varies by file)
State Inpatient Databases (SID) State-specific databases of inpatient discharge records. 2000 - 2014 (varies by state and file)
State Ambulatory Surgery and Services Databases (SASD) State-specific database of ambulatory surgery data and outpatient services data from hospital-owned facilities. 2000 - 2014 (varies by state and file)
State Emergency Department Databases (SEDD) State-specific databases of emergency visits at hospital-affiliated emergency departments that do not result in hospitalization. 2005 - 2014 (varies by state and file)

 

HCUP Claims Data Asset Metadata

Supplemental Data
  • RxNorm terminology
  • LOINC terminology
  • CPT_HCPCS
  • CPT_HCPCS_MC
  • BETOS
  • CCS_CPT
  • CCS_ICD10CM
  • CCS_ICD10PCS
  • CCS_ICD9CM_DX
  • CCS_ICD9CM_PX
  • CCSDX
  • CCSPX
  • ICD10CM
  • ICD10PCS
  • ICD9CM_DX
  • ICD9CM_PX
  • ICD9 to ICD10 General Equivalence Maps (GEMs)